Thursday, September 3, 2009

Day 13

anna is still stable, still breathing on her own (now through a tracheotomy) and is moving today to a Long Term Acute Care Hospital. she had her tracheotomy and feeding tube surgery on Monday. the surgery was a bit complicated, but overall went well and she seems to be recovering from it just fine.

anna's movements are a little bit bigger and stronger each day. her right eye is opening periodically, though it's hard to tell if she is looking at you or just opening her eye.

her neurologist, dr. manning, says that we now know that anna will have some disability from her brain injury. we just don't know how extensive it will be. i asked him a few questions yesterday that i'll share here. dr. manning's responses are in bold:

last week you said that you weren't ruling out a full recovery. are you now? what has changed from your point of view in the last week?

-i think a full recovery is less likely now, but the extent of her recovery is still a black box.

what do you think the best and worst case scenarios for anna are at this point?

-best: she talks and eats, drinks and walks -- whether she is able to be employed again is questionable. she may need some help around the house.
-worst case -- never really wakes up, permanent feeding and breathing tubes

when might you/we know if anna will need to be on a permanent feeding tube or permanent breathing tube?

-probably 4 to 6 weeks

some other notes from my conversation with dr. manning are below:

she definitely has some shear injuries and that doesn't preclude recovery, but we are realizing that they are definitely there. it's starting to be pretty clear that there is damage. it's likely that she'll have some disability.

her left side's weird posturing shows us that her injuries are there, but that isn't necessarily static.

where she's gonna be in 6 months is a black box. we will probably know more at 6 weeks and more again at 4 months.

it's still quite early and she is very young. she has a lot more recovery to do and that can happen.

that's all the news i have for people now. remaining positive for anna's recovery is important as we continue the marathon. thanks to everyone who is supporting us.

love,

molly

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